Thursday, April 9, 2009

Modified Adkins Diet/Ketogenic Diet

We are plugging along with Ethan's special diet which is an adjunct treatment to his medications. He eats a general fat to carb ratio of 3:1 with 6 small snack meals a day and a goal of 5-6 carbs per snack. We leave room for accidental carbs. The carbs that we give him should be low-glycemic which means below the level of 52.

This is HARD. He hates it. He is miserable. He cries at most meals. He has to be monitored at school. He eats two snacks a day in the health room in the front office and is supervised at lunch. Thankfully, he is able to join his classmates during this time.

We are, however, continuing. What choice do we have? Few meds work on our son. Even the go-to emergency valium-type drugs are worthless. He has severe allergies to Dilantin and Tegretol. Because he is so sensitive to medications, some that would otherwise be considered for treatment are labeled, "too risky." He has been buddies with just about every common side effect of every drug that he has taken. He is saddled with Depakote. Yes, this is the drug that medical personnel secretely have nicknamed, "devil child."

We are not giving up on the diet. Neither, thankfully, is our son. We can do difficult, probably because we have been a part of a nightmare and know the difference.

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